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When you live with epilepsy, you never know what kind of day it’s going to be. Some mornings I wake up feeling amazing, and other days I am barely able to force myself out of bed. Seizures can be unpredictable, and that’s why it’s so important to make the most out of the days when we feel our best.
But what do we do on the days we don’t feel our best? How do you cope with epilepsy?
Living with epilepsy, I’ve often felt as if I haven’t had control over my life, because I haven’t always had control of my body. My way of coping was to plan EVERYTHING in my life down to the tiniest detail. I wanted to control every aspect of my life, including epilepsy. Overplanning the details of my life gave me a false sense of security and was a coping mechanism that often left me feeling disappointed, stressed out, and exhausted.
Recognizing the Challenge
So how did I move past this? The first step was realizing I couldn’t continue to live my life that way – planning and micromanaging every detail. Even on the days when I barely had the energy to get out of bed, I found myself pushing through the fatigue and pain to meet my commitments. No matter how terrible I felt, if I could just put on a smiling face and act as if I were OK, everything would work out.
Unfortunately, that was an unhealthy and irresponsible approach to seizure self-management, and I’m grateful that I was aware enough to realize the unhealthy pattern I was creating in my life. But it took getting real with myself, being comfortable with the uncomfortable, and learning new ways to manage living with epilepsy.
Once I was aware of the pattern, I needed to self-correct. It became easier to understand how all my planning was not serving me. Planning out every second of life takes away the joy of living in the moment. It sucks the spontaneity out of being in the flow and dampens the magic of being present.
I slowly started to shift my mindset from a place of control to a place of flow, and that action helped me to better understand why my previous efforts were working against me, rather than in my favor. When I slowed down, I started to see all of the things I was missing… the little things, the things I should be showing gratitude for – walks with my family, catching my husband’s smile from across the room, and dancing while cooking dinner as my husband and I laughed at silly song lyrics. Those are important moments that I truly cherish, and they’re even more important when you’re living with epilepsy.
Timing Is Everything
There are 86,400 seconds in a day, and how we spend every second is a choice. I’m choosing to make the most out of my time by being in the flow, living from a place of gratitude for those small moments that we often take for granted. I don’t do this all on my own; however, I’ve implemented tools in my life that help me to stay focused on my goals and make living in the moment even easier. One of those tools is the SeizureLink System, which is a personal alerting device that allows me to feel independent and safe enough to go wherever the day may take me.
Not only is the device and accompanying app (for iPhone or Android devices) easy to set up and use, but it makes life easier by alerting my husband in only 9 seconds if I experience a tonic-clonic seizure. Other alerting systems I’ve used in the past took up to 30 seconds to alert my caregiver and 90% of those alerts were false alarms! But the SeizureLink System works differently than other personal alerting devices on the market, by using muscle, not motion to detect sustained tonic muscle contractions.
There are a few more features I really appreciate as a wearer that wasn’t available in other devices I’ve used. The SeizureLink app comes with the ability to add up to ten caregivers, has a downloadable seizure diary to record details about your seizure activity, and (this is a BIG one) you can manually alert your caregivers should you have an aura or sign that a seizure is on its way.
When every second matters, it’s important to have the fastest and most reliable personal alerting device on the market. If you’re ready to manage your epilepsy in a better way and live more independently by purchasing a SeizureLink System for yourself or a loved one, you can learn more here and choose the purchase method that works best for your lifestyle. Rest easy knowing your SeizureLink System is backed by a 30-day money back guarantee from the day you set up your SeizureLink app account and a 1-year limited warranty. More questions? Be sure to check out their FAQs.
Learn more about my SeizureLink experience over on their blog!